Baby whose ‘bucket list’ blog raised awareness on SMA has died

June 06 [Wed], 2012, 12:02


Avery Lynn rose to fame when her parents, Texas residents Mike and Laura Canahuati, started a blog to raise awareness of spinal muscular atrophy, a progressive genetic disease that limits the person’s ability to move their legs and arms and eventually their ability to breathe. Avery was not expected to live to see her second birthday. The family started a “bucket list” of all the things she hoped to accomplish in her life. ergo baby carrier organic navy plaid
The family announced on her blog that she died yesterday. The blog which is written by her father, but in her “voice” says this:
If you’re reading this it’s because I’ve gone to take care of my Uncle Bryant, Nana Carolyn, Papa George, and all my great Grandparents. I love you veeeeeeeeeery much. Also, tell Nana & G-Pa I love them too. In fact, tell everyone who loved me that I love them and I appreciate them caring about me.
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When I started writing my blog, I thought I’d only be speaking to my closest friends and family members. Little did I know soooooooo many people would care about me and while I’m flattered to have so many people who love me, I hope they will also take time to love and care about all of my friends out there with SMA.
You see, I’d never heard of SMA prior to being diagnosed with it, yet there’s thousands of my friends out there living with it today and millions of my future friends parents who are unknowingly carriers of the SMA gene. Without awareness and without a cure, I’m afraid more of my friends are at risk to have their lives drastically shortened by SMA. ergo baby carrier organic highland navy plaid
When people think of me, I hope they’ll also think of all my friends who have been through this and who are going through this now. But what I really hope for is that when people think about me, they will not waste time sitting there feeling sorry for me, rather I hope they will STAND UP in honor of me and all of my friends (past, present, and future). And they can do so by spreading awareness and helping to fund a cure for my friends.
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